Monday, March 2, 2009

We're home!

Yep, all 3 of us under the same roof again. Hayden was almost giddy just to do the usual things around the house....so were mom and dad. We had a great afternoon. His counts are still low so no public outings (which is fine by him) but he can go to school after clinic tomorrow, if he's up to it.

This is, so far, a minor set-back in his treatment plan. We can't start the next phase, called interim maintenance, until his counts are back up. This may take some time - which isn't bad, it just extends the duration of treatment. I remember telling him that if he takes his meds, cooperates through all of the procedures, eats well, etc., that he'll get through this quicker. Well, he did all of that...but some things are out of our hands.

The other set-back is in his strength and coordination - 11 days in a hospital bed is bad for him. He did laps around the nursing station and earned a fair bit of shwag from the sticker drawer and even the treasure chest (most of if funded by yours truly....as if they'd stock B.J. Penn stickers...). But it's just not the same as day-to-day activity, like climbing stairs, walking around the house, and going to school. So we have more exercises and stretches to get him back where we left off. And homework...lots of that to do too.

Ready for some good news? Here ya go: No more barthing! But wait...there's more. Hayden's eating like a horse. He's pretty selective and gets wicked cravings, but man can he go. It's great. We can alreay see that he's starting to fill out a bit. It's mostly due to the olanzapine (as opposed to my great cooking) but it's all good.

Thanks to everyone who came by the hospital, sent goodies, and left messages. We truly appreciate your support. And I know there are many more who are following this blog and wishing good things for us - thanks!

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