Go ahead JUMP

Hayden is loving his new trampoline! For a while we thought about getting a play structure but jumping is good physical therapy for him and it’s what he really wanted. A big thank you to the folks who generously contributed to this project. He will get years of enjoyment from it.

Hayden had an appointment on Tuesday, June 30 and, as suspected, his blood counts weren’t high enough to re-start chemo treatments. We did, however, make a day out of that clinic visit to rule out a blood clot in his Iron Man port (it’s rare, but it can happen). Dr. Stoffman suspected that Hayden might have one because his face was still puffy and his veins were really visible - but an ultrasound showed good blood flow. So that was a big relief…and the fact that he didn’t get any chemo means that he was feeling well for our Crowduck fishing trip! The weather wasn’t great but he loved it and went back out on Nutimik Lake the next day.

He was back at the clinic this Tuesday to see if he was ready to go. In fact, we were all prepared to spend that night in the hospital to start the second round of the Delayed Intensification treatment phase. Damned if he didn’t trick us again though…huh. His counts are still fairly low so we try again next Tuesday. The good news is that Hayden feels great, he’s happy, and active. It is so good to see him good! He recently golfed 9 holes and pretty much walked the whole course. He visited a movie set in Tyndall. He hit the driving range. He is a busy boy…and these are all things he can do despite being neutropenic (low on infection-fighting blood cells) because it’s all outdoors. The bad news is that it’ll be a little longer before we hit the maintenance phase (AKA cruise control)…and he still really wants to see Transformers!